Asingya Zephanus (Executive Director)
A sickle cell warrior and advocate whose personal journey with Sickle Cell Disease has shaped his commitment to change. He holds a Bachelor’s degree in Law, which gives him a strong grounding in rights, policy, and justice, and he has received specialized training in community awareness campaigns and Sickle Cell Disease. Rather than living quietly with the condition, he has chosen to speak openly and campaign for a cause that affects many families. He works to dispel myths and stigma, promote early diagnosis and proper care, and encourage communities to support those living with the disease. An inspiration to many sickle cell warriors, he shows that stepping forward is possible and powerful. Through his courage and leadership, he motivates others to embrace their identity, raise their voices, and join the movement for better awareness, access to treatment, and dignity for every person living with sickle cell.
Musumba Obed (Head of Programs)
He holds a Bachelor of Nursing. He also holds a certificate in sickle cell management and prevention. With about five years of experience working in several hospitals, he brings vast hands-on clinical knowledge to program leadership. This background ensures that interventions are practical, evidence-informed, and responsive to the needs of people living with sickle cell disease and their families. He champions early diagnosis, proper disease management, and prevention, while helping communities understand the condition and reduce stigma. Guided by compassion and a commitment to quality care, he works closely with his team and partners to turn the organization’s vision into real, measurable impact for sickle cell warriors and the wider community.
Ambassador Sean Lincoln Bardoo (Head of Advocacy, Partnerships & Resource Mobilization)
An internationally recognized humanitarian leader, legal advocate, and diplomat, he holds a Juris Doctorate in Law and a master’s degree in educational leadership and policy, and serves as a Bar Advocate, In-House Counsel, and International Court Mediator. Appointed Human Rights Ambassador by HRH Queen Maria Leonora Torres Mastura, he has worked across Africa, the Caribbean, North America, and Europe, partnering with governments ,nonprofits, and communities to expand access to justice and education. His honors include the President’s Volunteer Service Award, the 2025 Lifetime Humanitarian Achievement Award at the University of Oxford, and the Best International Social Justice Book Award for Modern Day Trafficking. Guided by his philosophy of “meeting people wherever they are,” he leads initiatives such as Laptops for Humanity and Global Book Drives, and brings this vision to building partnerships that support sickle cell warriors and others living with Non communicable diseases.
Kakwezi Aminah (Ass. Administrator)
She is a sickle cell warrior, and her personal experience gives her a deep understanding of the needs of the community the organization serves. She holds a diploma in secretarial studies, which equips her with strong skills in office management, record keeping, documentation, and professional communication. She supports the leadership and program teams by handling correspondence, maintaining accurate records, and welcoming partners, volunteers, and members of the community who visit or contact the organization .Reliable, detail-oriented, and committed to service, she provides the administrative backbone that allows the team to focus on its core work. Through her dedication and lived experience, she contributes directly to the impact of Amor Sickle-Cell Voice, helping bring awareness, support, and hope to sickle cell warriors, their families, and the wider community.
Masereka Isaac (Head of Research and Innovation)
He is a humanitarian and development professional with extensive experience in project management, refugee protection, human rights, peacebuilding, and community empowerment, having worked with government institutions, donors, civil society organisations, and humanitarian agencies. He currently serves as Projects Coordinator at Kabale University, supporting humanitarian research and interventions in refugee settlements. Isaac holds a Master of Arts in Human Rights and Development, a Postgraduate Diploma in Project Planning and Management, and a Bachelor of Laws. Passionate about social justice, community resilience, and inclusive, sustainable development, he brings a research-driven and innovative approach to the work of Amor Sickle-Cell Voice.
Masereka Joard (Community Engagement Officer)
He is a practicing nurse with Kasese District Local Government, serving at Mahango HC III, and holds a diploma in nursing. Working daily at the frontline of primary healthcare, he understands the real challenges families face in accessing quality care. He brings this practical insight to his role, leading community outreach, awareness campaigns, and dialogues that promote early diagnosis, proper management, and the reduction of stigma around sickle cell disease. Driven by compassion and a strong sense of service, he listens to community needs, builds trust, and encourages people to take part in the fight against the condition. Through his work, he helps extend the reach of Amor Sickle-Cell Voice and bring hope, knowledge, and support to sickle cell warriors and their communities.
Biira Trust Sheila (Head of Volunteers)
She is a practicing midwife at Kasese Hospital and holds a certificate in midwifery. Her daily work supporting mothers and newborns gives her valuable insight into the importance of early screening, timely care, and family education in managing sickle cell disease. She brings this experience to her leadership role, helping volunteers understand the condition and communicate with compassion and confidence during outreach and awareness activities. Driven by a deep sense of service, she fosters a culture of teamwork, commitment, and care among volunteers, ensuring they are equipped and motivated to make a difference. Through her leadership, she helps extend the reach of Amor Sickle-Cell Voice and bring hope, knowledge, and support to sickle cell warriors, their families, and the wider community.
Amor Sickel cell voice (ASCV) provides sustainable community based psychosocial interventions and home visits to support vulnerable households in rural Uganda. The organisation addresses critical gaps in sickle cell diagnosis, therapy and nutrition while empowering uniformed caregivers to manage complex care needs
